Effective date July 2017
On May 25, 2018 the EU General Data Protection Regulation “GDPR” enters into force. The rules will throughout Europe harmonize the privacy rules. GT follows the requirements already for all European markets incl. Norway and Iceland.
As in all health information, genetic information is the property of the individual from whom it is derived. GT understands that individuals have expectations of genetic information as they do for other health information.
- We follow the Data Protection Regulation of EU May 25, 2018 and other relevant legislation to data privacy
- We ask for consent of the individual before collection of genetic information before its use and potential disclosure to healthcare providers
- We limit ourselves to collect the minimum amount of genetic information necessary to process Personal Medicine ProfileTM for the benefit of individuals and healthcare providers convenience
- We acknowledge that genetic information by nature is particularly sensitive and intimate for our customers and their relatives. Besides protecting the data in our system, we ensure that it is the individual who decide with whom to share genetic data.
- GeneTelligence do not hold or store personal identification data such as CPR numbers etc.
- At all times you can request GeneTelligence to delete your Personal Medicine Profile TM – please contact us on: firstname.lastname@example.org
We have strict policies and procedures in place for protection of your personal information and we have a designated staff responsible for monitoring our compliance. As an example; the access to your Personal Medicine ProfileTM is limited to only a few healthcare professional employees working with quality control and medical conclusions. Each and every one of our employees is trained to take responsibility for maintaining and protecting the personal information relevant for their function.
When you access our website we will collect a information with the following purposes:
- To set up and manage the Personal Medicine ProfileTM requested
- To verify your identity and protect against fraud
- To ensure the security and reliability of our website
- To prevent tampering, damage, and/or misuse of our website
- To simplify your use of the secure account area.
Personal information as “list of medication” collected by GeneTelligence or one of our partners is voluntarily collected. In each case we will seek your consent to use and/or disclose your personal information as required in order to process the Personal Medicine ProfileTM requested.
You may, at any time, withdraw your consent; however, this will impede our ability to fulfil the requested Service.
If you are only visiting our website, we may collect some information about your computer, browser, operating system and IP address. We may also place a “cookie” on your computer in order to ease your use of the secure part of our website so that you do not need to login every time you navigate from one page to another. You will be notified if we place a “cookie” on your computer if you have “cookie notification” turned “on” in your computer system. Any “cookie” will expire upon you leaving our Website, or 30 minutes after placing it, whichever comes first.
We only collect the specific information we need in order to provide you with Personal Medicine ProfileTM. This means, that we do not analyse anything else than gene and gene variants related to medical metabolization – we can not provide you with information about inherited diseases, paternity or e.g. gene match in criminal matters.
We may collect some personal information when you visit our website such as your IP address, and the browser and operating system that you are using. When you sign up for our newsletter e-mail notification service, we will ask you to provide only your first name and email address.
You may choose to not provide us with certain personal information in some circumstances. However, please be aware that should you make this choice, we may not be able to provide you with the Personal Medicine ProfileTM or information that you have requested.
GeneTelligence is committed to a high standard of confidentiality and privacy. We will only use and/or disclose your personal information for the reason(s) it was collected. This means that GeneTelligence will share your personal information with you for the purpose of fulfilling the Personal Medicine ProfileTM requested, and may share specific personal information with a third part engaged to assist us in providing the information requested by you. In case of involving a third part – e.g. a pharmacist or doctor – you will be asked to approve this sharing.
Under no circumstances do we share your personal information with third parties without your consent, unless there is a requirement to do so by law.
We do not link your IP address with your personal information unless there is reasonable cause for us to believe that some security threat and/or legal requirements are in place requiring us to investigate and/or allow law enforcement to conduct some security and/or legal investigation.
GeneTelligence may decide to share aggregated DNA, medication and diagnostic information with research institutions to assist in the overall research development of genetic testing and sequencing.
We will ensure, to the commercially reasonable maximum extent, that any and all information supplied to these research institutions is and will remain anonymized.
GeneTelligence has a policy in place that governs the retention of your personal information. We will only retain your personal information for as long as it fulfils its intended purpose, until such time that you retract your consent for us to retain your personal information, or as legally required.
Genetelligence is committed to maintaining the accuracy of your personal information and ensuring that it is complete and up-to-date. With your consent, we are collecting your personal information directly from you or from your pharmacy or doctor, the latter given you have given your consent to this.
If you discover inaccuracies in your data, please notify us as soon as possible so that we can make the necessary changes. It is imperative that you keep your contact information up-to-date so that we (or your pharmacy or doctor) are able to provide you with relevant updates to your Personal Medicine ProfileTM, which may change with the publication of new genetic research discoveries.
Your information is secure within GeneTelligence, regardless of the format in which it is held.
We have comprehensive security controls to protect against unauthorized use, access, alteration, duplication, destruction, disclosure, loss or theft of your personal information.
We maintain physical, electronic and procedural safeguards to protect your personal information. Examples of safeguards include: restricted access to our information processing and storage areas; limited access to relevant information by authorized employees only; use of passwords; firewall technology; double encryption of electronically transmitted information; antivirus software; and the use of physical security measures, including secure locks on filing cabinets and doors.
We have agreements and controls in place with third-party service providers requiring that any information provided to us be transmitted and safeguarded with the highest technological security standards in mind.
Personal Medicine ProfileTM
Personal Medicine ProfileTM combines information based on a specific selection your personal DNA with information on how commonly prescribed medication is metabolized in the body. In other words we study your genetic variability’s affecting the response to your medication. This can tell you and your doctor how to adjust your current therapy to fit to your personal genetic profile.
In Genetelligence our objective is to support patients, doctors, pharmacies and payers interests in ensuring:
To give the right medicine to the right patient in the right dose
and only to pay for treatment that is effective.
The Personal Medicine Profile TM can also be used in the healthcare system as pre-emptive testing prior to a long treatment period or as evidence-based prescription.