Effective date September 2020.
On May 25, 2018 the EU General Data Protection Regulation “GDPR” enters into force. The rules will throughout Europe harmonize the privacy rules. We follow the requirements for all European markets.
As in all health information, genetic information is the property of the person from whom it is derived. We understand that individuals have expectations of genetic information as they do for other health information.
- We follow the Data Protection Regulation of EU May 25, 2018 and other relevant legislation to data privacy
- We ask for a specific consent from you to analyze your sample before we start our process.
- We ask for a specific consent from you before we disclose of any genetic information to your healthcare providers.
- We also ask for accept from your Healthcare Provider before providing any genetic information about your result.
- We limit ourselves to collect the minimum amount of genetic information necessary to process Personal Medicine Profile for the benefit of your and your healthcare providers convenience
- We acknowledge that genetic information by nature is particularly sensitive and intimate for our customers and their relatives. Besides protecting the data in our system, we ensure that it is you who decide about your genetic data.
- You may, at any time, withdraw your consent or change your consent – e.g., if you change your private practitioner – please contact us at e-mail: firstname.lastname@example.org.
- In case of a completely withdrawing your consent you must note, that it will impede our ability to fulfil the requested Service about continious updates. However, the Personal Medicine Profile is of cause your property as a pdf. file.
We have strict policies and procedures in place for protection of your personal information.The access to your Personal Medicine Profile data is limited to a few authorized employees. Our employees is trained to take responsibility for maintaining and protecting information relevant for their function.
When you access this website, we collect information with the following purposes:
- To set up and manage the Personal Medicine Profile homepage
- To verify your identity and protect against fraud
- To ensure the security and reliability of our website
- To prevent tampering, damage, and/or misuse of our website
- To simplify your use of the secure account area.
If you are only visiting our website, we may collect some information about your computer, browser, operating system and IP address.
We may also place a “cookie” on your computer in order to ease your use of the secure part of our website so that you do not need to login every time you navigate from one page to another.
You will be notified if we place a “cookie” on your computer if you have “cookie notification” turned “on” in your computer system. Any “cookie” will expire upon you leaving our Website, or 30 minutes after placing it, whichever comes first.
We do not analyse anything else than relevant gene and gene variants related to medical absorption, metabolization, distribution and elimination – we cannot provide you with information about e.g. inherited diseases, paternity or e.g., gene match in criminal matters.
Limited use of data
GeneTelligence is committed to a high standard of confidentiality and privacy. We will only use and/or disclose your personal information for the reason(s) it was collected. This means that GeneTelligence will share your personal information with you for the purpose of fulfilling the Personal Medicine Profile requested, and may share specific personal information with a third part engaged to assist us in providing the information requested by you. In case of involving a third part – e.g. a pharmacist or doctor – you and the third part (ex your doctor) will be asked to approve this sharing.
Under no circumstances do we share your personal information with third parties without your consent, unless there is a requirement to do so by law.
We do not link your IP address with your personal information unless there is reasonable cause for us to believe that some security threat and/or legal requirements are in place requiring us to investigate and/or allow law enforcement to conduct some security and/or legal investigation.
GeneTelligence may decide to share aggregated DNA, medication and diagnostic information with research institutions to assist in the overall research development of genetic testing and sequencing. We will ensure, to the reasonable maximum extent, that any and all information supplied to research institutions is and will remain anonymized.
GeneTelligence has a policy in place that governs the retention of your personal information. We will only retain your personal information for as long as it fulfils its intended purpose, until such time that you retract your consent for us to retain your personal information, or as legally required.
Genetelligence is committed to maintaining the accuracy of your personal information and ensuring that it is complete and up-to-date. With your consent, we are collecting your personal information directly from you, the latter given, you have given your consent to this.
If you discover inaccuracies in your data, please notify us as soon as possible so that we can make the necessary changes. It is imperative that you keep your contact information up-to-date so that we (or your pharmacy or doctor) are able to provide you with relevant updates to your Personal Medicine ProfileTM, which may change with the publication of new genetic research discoveries.
Your information is secure within GeneTelligence, regardless of the format in which it is held.
We have comprehensive security controls to protect against unauthorized use, access, alteration, duplication, destruction, disclosure, loss or theft of your personal information.
We maintain physical, electronic and procedural safeguards to protect your personal information. Examples of safeguards include: restricted access to our information processing and storage areas; limited access to relevant information by authorized employees only; use of passwords; 2-fase-access control; firewall technology; double encryption of electronically transmitted information; antivirus software; and the use of physical security measures, including secure locks on filing cabinets and doors.
We have agreements and controls in place with third-party service providers requiring that any information provided to us be transmitted and safeguarded with the highest technological security standards in mind.